It stands to reason that parenting doesn’t come with a manual because every child is different. How easy it would be to know exactly when and how a child will react, or calculate the date at which they will begin to crawl, walk, and talk. Or what to do to turn off a public meltdown like a light switch. There are a plethora of parenting books out there, but at the end of the day, one can only glean general advice that may or may not apply.
Adults are the same way. We’re all uniquely created. Psalm 139:14 (NIV) says, “I praise you, because I am fearfully and wonderfully made; your works are wonderful, I know that full well.”
My interpretation: “God doesn’t make junk!”
We aren’t junk. I know this now. It’s taken me a long, long time to know this. John 3:16 says that God LOVES us. We sang songs about this, even in the spiritually-abusive churches I attended. But why was this not displayed? One minute, we’re worms; filthy rags, destined for hellfire. We slip up even a little, then we’re separated from God and we can miss the rapture and go to hell. The next, we’re singing ‘Jesus Loves Me.’
This thinking kept me bound in fear constantly as the years passed in the church. Fear, depression, anxiety— all symptoms of underlying mental health conditions, exacerbated by my environment. I saw what I perceived to be strong, “perfect” Pentecostals around me, and it slowly killed me inside to know I wasn’t like them. My heart just didn’t feel as… in it. They prayed an hour a day and fasted regularly. I could barely focus enough to pray more than five minutes without falling asleep. Fasting was a no-go for me because of a medical condition.
When I read the Bible— the strongly-recommended King James Version, like a good Pentecostal— I had trouble interpreting the vague, flowery text (one reason I relied so heavily on the preached/taught interpretations). I wanted to read and write fantasy and sci-fi novels, but anything to do with magic and aliens was seen as evil. And so my imagination was chained unless I covertly sinned and wrote in secret (which, I confess, I ended up doing).
And why did I have such a hard time “witnessing” to people? We were constantly commissioned over the pulpit to bring people to church; to tell them our testimony. I could make friends (though it took me a long time to come out of my shell enough to do so), but, over time, I found that I didn’t want to change them. They were my friends because I liked them.
My initial haughtiness I had when I first got into the church had long since faded, and now I felt low beyond low. I thought it was a sin to love myself. How could I lie to people and tell them that church was a bed of roses and there was joy unspeakable when all I felt was unspeakable sorrow? Over and over, I brought it to the altar. I claimed victory. I’d feel great after an evening service, perhaps, but then that feeling would fade quickly. It was nothing but a band-aid on a wound that cut to the bone.
Between all of my own issues and dealing with Stella’s increasing behavioral issues and obvious developmental delays, I began to feel like an overall failure. And the only advice I could ever get from the church was “Pray about it. Give it to God,” or some other lovely platitude. Even at the altar, when I sobbed and begged God to send me a friend, some real support, I would look around to find no one. No hand laying on my shoulder to pray with me. And I assumed it meant I wasn’t worthy. In reality, that probably was not the case, but when you’re so deep in mire, your vision is clouded.
My panic attacks were coming on strong and constant. I became afraid to be around people more and more. I didn’t want to leave the house, or hardly get out of bed when I was home. Thoughts of leaving this world played through my mind on repeat. The house was going to heck in a hand basket, and things were reaching a breaking point. One night, during a particularly bad panic attack, my husband got frustrated and asked me what was wrong with me. I started crying and told him, “I just want to die! I want to die…”
At that point, I should’ve gone to a hospital. Paul should’ve taken me. Looking back, I know that now. But we were in an environment where mental health was still not talked about as openly, and not doing well was not okay. Paul didn’t know how to handle it. He felt as helpless as I did. Somehow, I survived in that moment. I clung to my husband, and we made it through.
After that awful night, I did something new: I sought help from a psychiatrist.
My nerves were riled with anxious energy, sitting in that waiting room. Would I have to lay on a couch? Tell her about my childhood? Was she going to hypnotize me? Would I still be a good witness to her even after she learned of all my issues? I’d heard all kinds of things about “shrinks,” and I wasn’t fully sure what to expect.
When it was finally my turn to go back to the office, I took a deep breath. I was greeted by a pretty, smiling woman with dark, curly hair in a light gray pantsuit. She introduced herself as Dr. Rolling and had me sit in a black, cushioned leather chair across from her at her L-shaped, cherrywood desk. The sunlight was pouring through the wall of windows at my back. It was a pleasant atmosphere.
“So, tell me about yourself?” she asked.
My story came out slowly at first, but was soon pouring out like the tipping of a bucket. Dr. Rolling listened intently, making lots of notes. She didn’t pass one iota of judgment when I told her about my storms, and my panic attacks— any of it. In fact, she showed more empathy than I’d experienced in a long time. And she offered something other than just well wishes.
I left with a diagnosis of ADHD and an anxiety disorder, but more importantly, I left with help. She started me on new medication to try and help alleviate some of the symptoms. It was explained how my brain chemistry works differently and taking medication for mental health was no different than taking it for high blood pressure or anything else. It relieved some of my fears, and from then on out, I felt completely comfortable going to see Dr. Rolling.
The medication did not completely cure my storms, but it took the edge off. As I would find out, sometimes life has a way of getting you down regardless. In 2010, at age three, Stella was kicked out of her Christian-run preschool because of her increasing behavior issues (she’d bit another child). She still wasn’t potty-trained, in spite of our best efforts. Her language skills were mostly echolalia, repeating words and phrases she’d picked up from us or her favorite tv shows. We had her evaluated by a pediatric neurologist, who came back with a diagnosis of autism. At the same time, she was also evaluated and enrolled in the local Title 1 preschool, where they were better equipped to teach kids who had differences like Stella. I left my job at the bank to work from home for my mother’s online-based business so I could focus on her.
The reaction from the church was mixed. Some people were supportive. Others thought she needed it prayed out of her. There were some who insisted she needed it spanked out of her. All the while, I was fed fear-mongering information from various popular sources at the time, and found myself falling into a deep pit of “what-ifs”, and wondering if I was somehow failing as a mother. This did little to aid my nearly non-existent sense of self-worth as a Christian.
In 2012, life began to shift yet again. I gave birth to our second child, Parker, in January. During my pregnancy that prior year, I had joined an online group of women who were all due to give birth at the same time, and formed some life-long friendships as a result. These women weren’t Pentecostal, but they were amazing, just as they were. None of them wore skirts, or had uncut hair. They wore makeup and jewelry, and even used four-letter words (gasp!). But I’d finally found people I could be honest with and talk about my storms to. I was supposed to witness to these women— be an example of the church and Jesus to them, but instead, I found that I loved them just as they were. I was taught that people like them were of the devil, and that they were bound for hell. But all I felt was unconditional love— the kind Jesus showed.
It’s ironic that the church discourages people from becoming “close” with people who aren’t in the church, when Jesus himself chose to hang out with publicans and “sinners”. He went to those that society deemed as less desirable in some shape or form. He fed them, spoke with them, healed them. It’s my understanding that healing can be invisible. It’s not always the healing of a physical wound— sometimes it’s the building of a bridge across an ugly, ancient rift. Or an anchorless ship finding a safe harbor at last. Or… perhaps a lonely soul finding kindred spirits.
From these ladies, I gradually learned lessons of kindness, acceptance, and grace over the many years to come.
In 2013, I was evaluated and received my own autism diagnosis at last. The church people began to subtly pull away from me when I let the news be known. I remember the uncomfortable aversion of eyes. Even the pastor’s wife gave just about no response when I excitedly texted her, because I finally had answers I’d been searching all my life for. It was disheartening. After all, I wasn’t broken, just different! Why did I suddenly feel like a leper among the people I’d known for years?
My 2012 Mommies, however, held me up and embraced me wholeheartedly. It was this love that held me as life at home and church slowly descended into a new phase of turmoil… that would ultimately lead to my exit from the church and the start of a new journey.
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SO many women are getting an autism diagnosis in their 30s or 40s after their child is diagnosed! It was an article on FB of the number of women that go without a diagnosis due to the diagnostic criteria being geared to catch it in boys that woke me up to the possibility that maybe I am. My son definitely is. My counselor gave me her opinion that I probably was. Later I realized that my dad is as well. It explains SO much! Now I can accept his emotional distance because he simply isn’t able to do more. I can accept him as he is. Thank you for doing the work of sharing your story. Remember – Marie Curie probably was, as well as Albert Einstein. I believe we’d NEVER have gone to the moon without (probably undiagnosed) autistic engineers working on the mission! With understanding, we can rejoice in our unique design, and create a more understanding world for our wonderful, unique autistic children. 🙂
I never had children and I am now divorced, but so much of your story is all too relatable for me.
*THAT* upbringing in pentecostalism caused me to not learn who I was and what I needed in a partner. It was all about keeping my “self” in a kind of holding pattern until I met “the one” so I could then mold my “self” around him, in order to be the “helpmeet” that God had (apparently) created me to be.
Ugh. Vomit!
Now I am heading for 60. I am dubious about ever having a relationship that is fulfilling and emotionally “safe” enough to quit my relative FREEDOM for.
I too was diagnosed with ADHD a couple of years ago – answering a lifetime of questions, making a world of difference to my sense of self worth and finally beginning to receive the help I desperately needed.
And, eerily similar, both my psychiatrist and I now suspect AuDHD… making a lot of sense because I believe I inherited the ADHD from my mother (she’s undiagnosed, but oh so ADHD!) and we are certain my dad was ASD.
I too found the most genuine acceptance among my “unchurched” friends. Whilst I long for them to genuinely encounter Jesus, I too do not wish to change them. I honestly don’t believe God wants to change them *in the ways the church would want to) either.
I think God simply wishes to heal their pain and show them perfect love.
But I digress.
Where you emotionally separated from church, I physically separated. I had around 20 years “post church experience”.
I chose this separation when I realised that I had allowed my lack of boundaries with church involvement to unintentionally steer me into an unsuitable (doomed to fail) marriage and, thus, deeply hurt a young man who absolutely didn’t deserve that.
It was here, post church, I redefined my faith to something much more based in Jesus rather than in human teaching.
I might say I got “back to basics”, but I feel I never previously had really *got* the basics in the first place.
Stepping back…. having had a Catholic Charismatic childhood, Pentecostal teens/tweens, Charismatic Anglican/Baptist mid twenties… throw in 2 years at a non-denominational Charismatic/Pentecostal Bible College, mixing with beautiful Christians from myriad denominations…. thus stepping back I mused on how there were so many interpretations of our faith… of our scriptures.
I decided to “ask” Jesus to show me His interpretation.
I turned to the “words in red”.
Over and over again.
And the biggest collection of words in red is, of course, The Sermon on the Mount.
I sat there. I mused there.
I lived there.
For years.
And one day, a light came on.
“On these two hang all of The Law and The Prophets”.
Basically, all our scripture hangs on the two Laws of Love.
If it the interpetation is based in fear, xenophobia, self-righteousness, judgement of others, hate (all of the prior listed attitudes are, or lead to, forms of hate!), anything but Christ-like Love… then it is incorrect. Period.
And Christ-like love! Ohhh what a revelation!
Jesus’s favourite people to hang out with were the very people his “Church” told Him were to be avoided at all costs, lest they “defile” Him. He *loved* them.
He *loved* them.
And he rained down his judgement and disappointment not on *them* but on those self-righteous and hypocritical *religious* “exemplars” who despised them!
TALK ABOUT EYE OPENING!
My faith was revitalised. It lost all of its inner conflict.
One question remained on the two Laws of Love – how to rank them. What if they were in apparent conflict in a situation? Which should take precedence?
My upbringing would say: “That’s easy… first is first, second is second! Plus, only the first is one of the Ten Commandments (and the FIRST of those!)”, but my new understanding of Jesus made that feel all wrong.
I asked deeper questions.
I observed Jesus’s style of teaching. He frequently showed that the question someone asked was not the question they really needed answered.
This is exactly what happened in this instance.
The “teacher of the Law” never asked what the second greatest commandment was. In fact, Jesus never said “*the* second”, He said “*a* second”… more like “an additional” rather than “the next in importance”.
So, Jesus was answering the unasked question, the question He knew was actually most in need of an answer.
And He wasn’t necessarily ranking these commandments.
Was He?
What did He mean by “*like* it”?
Time to look into original language.
I looked into other scriptural uses of the same original language word as well actual definitions.
My conclusion:
Where we would interpret “like” variously including “similar to but not essentially the same” (the very way this pair of Laws is commonly taught), my research showed it was more equating the two.
“Like” here means basically “so intrinsically alike in nature as to be inseparable”.
So, I learned: if we are not loving our “neighbour” (in a Christ-like loving way!), we are kidding ourselves if we think we are truly loving and serving God.
And THAT is how, I believe, Jesus teaches us to interpet ALL od scripture.
Mind blowing!
(At least it was for me).
And so here I am, on my journey, my faith turned upside down and inside out and yet, somehow, finally essentially in alignment with the empathetic, compassionate heart God gave me…
And finally gaining understanding of myself… of why I feel “out of place” in so many situations….
And my whole sense of self worth has changed (finally grounded in reality and not in comparisons to others!).
My motivations for everything I do have changed.
My definition of “love” has changed.
My understanding of “love your neighbour” has changed.
My understanding of loving God has changed.
My understanding of the nature of God’s heart toward us *all* has changed.
“God doesn’t make junk.”
So true.
God doesn’t make mistakes.
But oh how we do!
I eventually found my “Goldilocks church”, ironically it is the much evolved (and equallty numerically diminished) very same local “pentecostal” congregation of my teens/tweens…. now very much the “black sheep” of the parent denomination 🤣
It’s not perfect, but neither am I.
But it is the right place for me right now. It is inclusive (in every way), it is mental health affirming, it is deeply invested in “love your neighbour”, it is committed to serving the local community “no strings attached”, and it *supports individuals having boundaries – ibcluding boundaries where church involvement is concerned.
I serve now, perhaps more effectively than ever before. But I also draw boundaries wherever, whenever I need to… and that is respected.